A chef with Down Syndrome
People with disabilities strive each day, sometimes against exceptional odds, to be considered as productive and valued members of society.
“Generally, however, people with disabilities are highly capable, and can do most tasks put to them within reason. They should, in every sense of the word, be respected and appreciated for their contributions,” notes Sibo Dube, Patient Advocacy Lead at global healthcare company Novartis.
According to a recent report by the World Health Organisation, healthcare disparities among people with disabilities often lead to early death, sometimes by as much as 20 years. Limiting factors listed include the negative attitudes of healthcare workers, the presentation of medical information that’s difficult to understand, and difficulties accessing healthcare providers.1
Dube explains that medically speaking, disabilities are by their very nature advanced health issues, and that people with disabilities are unfortunately at a considerably higher risk of contracting additional illnesses. As such, they should be receiving individualised and frequent care from specialised healthcare providers.
Novartis has made it its mission to educate the public on health issues, create awareness, and advocate for transformation.
“Change always begins with acknowledging that a problem exists. It’s crucial that as a society, we raise awareness on the topic of disabilities, learning and teaching others how to correctly work with people with disabilities, and promoting positive change.”
What constitutes as a disability?
Disabilities range widely in type, extent and severity, and each unique instance of disability should be treated differently.
Three main classifications of disability exist, namely: impairment of a person’s bodily or mental structure and functions, such as a loss of limb, vision, or memory; activity limitations such as difficulty hearing or walking; and participation restrictions such as being unable to work or participate in social and recreational activities.2
The causes and risk factors for disability include illnesses such as epilepsy, heart disease, and Parkinson’s disease;physical injuries; musculoskeletal disorders; poor overall health and weight issues; and mental health problems and depression. These can impact a person’s vision, hearing,ability to learn, remember, communicate, or think, and can lead to societal stigmatisation and discrimination.
Persons with disabilities are also twice as likely to develop other conditions such as depression, asthma, diabetes, bodily pains and obesity, as certain conditions adversely affect the body in other ways.3
Appropriate etiquette
Dube notes that it’s understandably difficult to know how to work and interact with people with disabilities correctly or appropriately if someone hasn’t done so before. As for healthcare workers, it is considerably more important that they understand how to properly address and help people with a disability.
“It requires a delicate balancing act between treating these individuals like you would treat anyone else and including them in all facets of society, while giving special attention or consideration to their particular needs. One tip that I usually give others is to focus on these individuals’ strengths and abilities rather than any impairments.”
Other etiquette tips include:
“And remember, always be respectful, treat others as you want to be treated, and just be yourself,” she adds.
Novartis’ purpose is to develop science-based innovation that produces breakthrough medicines and products that deliver better patient outcomes. Its ongoing research, especially inthe areas of aging and regenerative medicines, aims to fundamentally improve the health and lives of people with disabilities.
The renowned pharmaceutical company is intent on spreading awareness of disability and other public health issues, and to advocate for improved healthcare globally.
